Advocacy & Support Groups
A list of Covid advocacy and support groups that are great resources for: provider information, post covid care centers, research studies, clinical trials and just someone to talk to who understands!
The Long COVID Alliance is a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness.
We founded Body Politic as a queer feminist wellness collective in March 2018. Based on personal experience and community feedback, we created space for inclusivity, accessibility, and crucial discussions about the very real connection between wellness, politics, and personal identity.
In March 2020, our COVID-19 Support Group launched when Founder Fiona Lowenstein and Board Member Sabrina Bleich became sick with coronavirus. Since its launch, the Support Group has garnered international recognition and has connected thousands of Covid-19 patients around the world.
We are Long Covid Families, led by patients, volunteers & advocates – we are a 501c3 nonprofit organization in the United States. offer guidance to the Long Covid community on how to improve and maintain quality of life while seeking therapies, treatments, accommodations, and support in the healthcare system, schools, workplace, and in the community.​
The COVID-19 Health and Safety Taskforce (CHeST) is a coalition of non-profit patient advocacy organizations.
The mission of CHeST is to advocate for policies that protect Americans against COVID-19, long COVID, and associated conditions.
CHeST supports policies that:
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Raise awareness about COVID-19, long COVID, and associated conditions;
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Empower COVID-19 survivors to thrive in their communities; and
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Increase the availability and accessibility of resources for preventing, diagnosing, testing, and treating COVID-19, long COVID, and associated conditions.
Support groups are a great tool as we all need connection to those going through similar experiences. Sometimes we need a bit more and that's OK! Mental health services are available through your provider, healthcare coverage or organizations like NAMI.
Always know the suicide prevention hotline is available 24/7
( 1-800-273-8255 ).
YOU ARE NOT ALONE
~Liza